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Erin Reed Joins the Fight

The Seany Foundation like to share this heartfelt story in Erin’s own words:

“Five years ago my mom died of cancer. A brutally random, generally pediatric form of bone cancer called Ewings sarcoma. My stomach still turns after saying those two ugly words. Over the past five years I have experienced every imaginable emotion. I have been left lonely from the loss of my best friend; devastated over the loss that my children are experiencing, yet are unaware of (I was seven weeks pregnant with my first son when she passed) and pissed off that I now have to cook Christmas dinner. I exchanged most of my wedding gifts for shoes. I was never planning on knowing how to cook a roast, or explain to my children ‘why they can’t see god.’ These were going to be her jobs, not mine. Now, I am a mom of two, and I have shelves of stilettos covered in dust, and I just made Halloween cookies that tasted like chicken because I own only one baking sheet. Life was supposed to be different. Aside from sadness, anger and loneliness, my latest emotion is shame. I am so deeply ashamed that I have hidden behind this veil of sadness and have not done one thing to honor my mom’s memory. It has been so difficult to see her picture, or even speak her name, but she deserves better than that, because she was awesome. The type of mom that all of the other kids wished their mom could be just a little bit more like. The type of mom that I will never be, but cling to the hope that I just might because I have a little of her DNA. One thing is for sure – she never served me chicken-flavored halloween cookies. So why am I so publicly sharing this? Because I’m learning that childhood cancer is the number one killler of children. It kills more than asthma, diabetes, cystic fibrosis and pediatric AIDS COMBINED, yet the National Cancer Institute spends less than 3% of it’s $4.6 billion budget on pediatric cancer and the National Cancer Society spends less than 70 cents per $100. It’s unacceptable. I have already lost one love to pediatric cancer. I cannot loose my two naughty, dirty boys who break windows, run with scissors and refuse to eat their vegetables. That will take me out. Sadly, I know that the boogie man is real. He’s already visited me and I’m terrified that he will return. So here’s my start to honor my mom and join in the fight against pediatric cancer:

I have a tiny online jewelry site called Gypsy Sol Designs (www.etsy.com/shop/gypsysoldesigns) I will be donating 25% of my profits in November and December to The Seany Foundation (www.theseanyfoundation.org). They work really hard to support cancer research and do cool things for kids with Ewings Sarcoma and other forms of pediatric cancer. So, if you’ll be holiday shopping, think of me. Thanks for letting me share my story. I can’t wait to cut the Seany Foundation a fat check in the name of the friends of Valerie Farris, because there were many. Xo.”

Thank you, Erin. And welcome to Team Seany!

 

Understanding Cancer in AYA

AYA = Adolescents and Young Adults

One of the reasons cancers in adolescents and young adults is so difficult to treat is because it’s just that: cancer in adolescents and young adults. The amazing transition from childhood to adulthood poses great challenges for cancer treatments in this particular stage of life. According to Dr. Brian Hayes-Lattin, “More than 72,000 adolescents and young adults (ages 15 to 39) learn they have cancer each year in the United States, a number up to seven times larger than the number diagnosed under the age of 15.” For more on why The Seany Foundation is concerned about improving treatments for teens and young adults, read the full NCI Cancer Bulletin article.

Seany Releases New Ewing’s Sarcoma PSA

September is National Childhood Cancer Awareness Month, and The Seany Foundation is striving to bring some very much needed attention to some little known diseases.  As research money comes trickling down the cancer heirarchy, these rarer pediatric cancers are often overlooked.  This gives us all the more reason to make some noise about them.  Find out a little bit more about Ewing’s sarcoma, the type of bone cancer that Sean battled for nearly 7 years:

Introducing a Few Good Friends

Hey friends,

In today’s economy, to whom you give your business makes a significant impact.  Here are some links to just a few of our supporters that we’d like to recommend to you.  These are socially responsible businesses that have given The Seany Foundation a helping hand within the last year:

Best Buy

Weymouth Honda

Proflowers.com

Pamplemousse Grille

UltraStar Cinemas

San Diego Zoo

Detroit Zoo

OurCity San Diego

Scribbles, Ink

North Shore Printery

Jimbo’s Naturally

Pacific Athletic Club

MorganStanley SmithBarney

Kleinfelder Group

Forte Belanger

Alfonsi Railroad

Mountainwest Realty

In Your Face(Book)!

That’s right.  We’re running rampant on the internet now.  Seany’s all the rage.  So, why haven’t you joined in the fun yet?

Join our Fan Page, our Cause page, and/or our Groups page on Facebook to stay abreast of all the lastest and greatest information from The Seany Foundation!  It’s a great way to help us spread the word about our fight against childhood cancer.

If you need some more Facebook friends, feel free to request “Buddy S. Robins” to cheer you up!

Our Teens: “Dying in Their Prime”

More reasons to support The Seany Foundation:

This article is from Science Magazine and charts the lower survival rates of teens diagnosed with cancer.  It also talks about Ewing’s sarcoma, the rare cancer that Sean was battling.

If you’d like a pdf version of the article, just click on the image to download the pdf.

What Is Ewing’s Sarcoma

The more we can find out about these orphan diseases, the more we can do to help treat them and find cures.  Here is an informative video about Ewing’s sarcoma, the type of cancer that Sean battled for 7 years:

Seany Foundation Raises over $90,000!

Thanks to the generosity of the Everything Is Possible Celebration ’09 sponsors and guests, The Seany Foundation was able to raise over $90,000 to benefit its local projects to help find cures for pediatric cancers and to improve the quality of life for kids currently battling cancer.

The evening began with an open bar and about 40 silent auction items open for bids.  Guests then enjoyed the delicious cuisine catered personally by chef extraordinaire, Jeffrey Strauss (of Pamplemousse Grille).  A photo booth, caricatures, and raffle prizes kept guests entertained while Kamau Kenyatta rose spirits with his jazz tunes.  Bill Menish had his share of fun with the crowd during the live auction and also welcomed special guests Willy Santos and family and Assemblymember Lori Saldana to the party.

Pro skater Willy Santos (right) auctions off private skate lessons and lunch

Pro skater Willy Santos (right) auctions off private skate lessons and lunch

After a touching video about the Foundation and its mission, hearts throughout the room were warmed by guests “raising the paddle” to donate to help fund not only pediatric cancer research but also patient projects such as the teen activity center and rehab swimming pool.  And thus, Seany’s legacy continues.

Mitch Robins, Assemblywoman Lori Saldana, Amy Robins, and Barry Abrams enjoy the evening.

Mitch Robins, Assemblywoman Lori Saldana, Amy Robins, and Barry Abrams enjoy the evening.

We’re well on our way to hitting that half-a-million-dollar milestone.  Not bad for only a couple years!  And we’re just getting started!  Look out childhood cancer!  Your days are numbered.

Thank you to those who made this event possible: Daniel Baird Photography, Chris Daily, all of our wonderful volunteer staff, the Mission Bay High Key Club, our generous sponsors and item donors (check out the list on the News and Events page), Diane Kern, Bill Menish, the San Diego Hall of Champions staff, Willy Santos and family, Assemblywoman Lori Saldana, North Shore Printery, Scribbles Ink, Rene Van Rem, Blue Photo Booth, Kamau Kenyatta, Jeffrey Strauss, all of the lovely people in attendance, and, of course, our Seany Foundation supporters who couldn’t attend but still donated.  You can all feel very good about doing good.

Plans for next year’s Celebration are already in the works.  The date has been set for October 10, 2010.  That’s right: 10/10/10.  So, mark your calendars because it’s sure to be one party you won’t want to miss!

National Childhood Cancer Awareness Month Campaign

Help us increase awareness this month by spreading the word about the work we do:

Vote for The Seany Foundation at http://www.ilovechristiecookies.com/contest/form.asp in The Christie Cookie $25k Charity Giveaway.

Vote for The Seany Foundation!

The most nominated charity will receive a check for $10,000!

Help us outfit a comfy entertainment room for the teens under treatment at Rady Children’s Hospital.  Just vote today!  You can vote once for every valid email address that you have, so vote now, and vote often!  Ask everyone you know to do the same, and you can make a huge difference.

Nominations must be submitted on or before October 15, 2009. The winning charities will be announced in November 2009. One vote per email address.